Sunday, April 23, 2017

Rare Medication for Progressive MS

nationalmssociety.org/About-the-Society/News/FDA-Approves-Ocrevus  For those of us who have Progressive Multiple Sclerosis comes a rare find, a medication for us. It's very costly right now but it seems to hold promise to slow the progression.

Sunday, April 16, 2017

A Blues Song about our relationship called Shipwrecked

https://soundcloud.com/downtownvinnie/shipwreck   In the early days of our relationship we wrote this blues song when we were in our band called Nervous Rex. "Titanic lover, you threw me overboard. You're that SOS that I chose to ignore. Pirate of desire, pirate of those schemes, you're that damned ole pirate who came and stole my dreams. Shipwrecked, shipwrecked on the island of your emotions, emotions.
We hope you love this fun little song.

Saturday, April 15, 2017

Trump just can't help himself: another blow in the war on women

One of the leading causes of death for young women is murder by a partner -- often involving the use of a gun.

The statistics are terrifying: women suffering from domestic violence are EIGHT times more likely to be killed if there are firearms in the home.[2]

But President Trump wants to cut all grants under the Violence Against Women Act, leaving women in dangerous relationships without the vital support they need.
SIGN NOW: Stand with women against gun violence >> http://action.wagunresponsibility.org/page/s/Protect-Women-Now?source=MS_EM_PET_2017.04.15_B1_Protect-Women_X__F1_S1_C1__ns
The squeaky wheel advocates for women and girls and people with disabilities
And this week Trump did another crime against women, he secretly passed another executive order giving states the right to defund Planned Parenthood, even though no federal money goes to abortions. So I have a great idea! Why don't men start taking responsibility for birth control and get signed up for a vasectomy?
Women get smart, abstain until your man gets his vasectomy!

Tuesday, April 11, 2017

Oregon author publishes book "The Eve Chronicles" by Diane DeVillers

https://www.worldpulse.com/en/community/users/girlpower/posts/75947
Check out my new book "The Eve Chronicles" about a self-reliant woman who lives in the Oregon wilderness near Coyote Springs in the Wallowa Mountains. Doing timber stand inventory for the Forest Service she lives in her tent alongside a small group of other foresters.


Sunday, April 2, 2017

Where to find the light within

Where do I look for the light? Well so many of us look outward to others or outward toward religion. But I look for light within myself. That although times can be dark, I can always look inside myself for a part of me that is light, that is hope, that will help me reframe the darkness so that I can feel whole again. Sure others and religion can be teamed up with yourself, but I find that if you are feeling down or are in the dark, it's up to you to find the solution deep within yourself. Just think back to a time when you were happy and feel what that feels like. Then bring it with you into the present and embrace it, embrace the feeling, make it yours.
So often people think other people or religion has all the answers but I know I am the person who has the answers. It's more realistic to me. That I am the master of my emotions, I am the one who can make a choice every day to be positive or be sad. When you take the responsibility for yourself and your emotions, it makes it easier to see where the fault is, within yourself. It makes for more empowerment when you see that your attitude is all about you, that you own it. That you can make the change into a life where you are in charge of your destiny.

Wednesday, March 1, 2017

Oregon author publishes book 'The Eve Chronicles" about when she lived in the Wallowa Mts.

http://dide22.wixsite.com/diane-devillers My book about the early 80's is about a self-reliant woman during the height of the women's movement who goes to Oregon to work as a forester in the wilds of the Wallowa Mountains in Eastern Oregon

Wednesday, February 22, 2017

Two women talk about the first time they found out they had Multiple Sclerosis

This woman wrote a touching blog about when she first found out she has ms.
After you read her blog this is what I wrote her:
Your story touched me deeply, I too remember walking out of my neurologist's office, down a long hall thinking I knew something was wrong, but the final revelation hits you smack dab in your middle. I spent my twenties at a thin I could eat everything size and I went through life as a beautiful woman, who could get herself hired, or any man that I wanted. Well when I was 53 at the height of my career, caring for disabled people, I ironically got MS and was forced to retire. i wasn't a happy person for the first year, took to counseling to stop the anger about why God would take away my life work. I used all my expertise and got all the wheelchairs, walkers, grab bars and ramps and set down to wait for the shoe to drop. Well, all the work stress had made me get steadily worse, progressive kind, my neurologist wrote a letter, about how he thought i would be wheelchair bound shortly. Well, when I finally quit the job, it took a year struggling with fatigue, the heat making me get vertigo and the feeling tired all the time. Well, I would have kept working although my counselor was asking "When are you going to let Diane quit that job" the 16 hour days was literally killing me. Well, it took a finally fall, where my back was so bad I was bedbound for 6 months. My loving mate, he took care of me, after he came home from work, he cooked and brought up a tray, he stood behind me in the shower holding me up so i could shower. It made us unbelievably close, closer. Well, guess what I am 60 and I haven't gotten worse, that's right after taking stress out of my life, My MS stabilized. I walk with canes, walker and sometimes use the wheelchair, for the air cushion I sit on, keeps my back from getting so bad i have to lie down. I got on a good pain me, which gave me my life back. But the skinny woman, well, I got fat, oh yes, as I wasn't as active as before. So i was the opposite of you < I was skinny and now had to adjust to being fat. I know how you feel, the self-esteem lowers, I wear clothes to hide the heaviness. But I got busy and started a twice a day work out. every morning, first thing I jump on my incumbent riding bike and ride 45 min or 8.2 miles, then up on the bed for weights, crunches and another 20 min. Then i swim every tue and Thursday, swimming a straight hour, laps non-stop. I am in the best physical shape I have ever been, I lost 16 lbs but need to lose 30 more but I am healthy. My bad vice is sugar.
So don't feel bad, you are who you are, MS will not define you after awhile. No really when I first got MS i thought i was going to die. But it has been bearable. But wait for it, here comes the good part, I was cleaning out my closets and found my old journals from when I first moved to Oregon and was working as a forester living in my tent doing timber inventory with six other people. Well as I sat chuckling, as the mostly men crew teased me relentlessly, i thought this would make a good book. And so I wrote three books, 'The Eve Chronicles" by Diane DeVillers, look it up on Amazon. Without getting MS I never would have had the time to write them. Without MS I never would have known how much my darling beloved loves me. He took up the slack, works longer hours and we kept the house which we both love, on Moon Mt. what a great name.
So darling, just put MS at the back of your mind, don't jinx yourself, and breathe, breathe, and be, be you. You are a child of the universe, perfect just the way you are.